Shabbos - Day 12

Toren had a very good day yesterday that tired him out quite a bit though. Friday included PT, and by the late afternoon the task of standing that seemed so imposable in the morning was accomplished with great pride. Toren was able to eat, with the help of mummy and his wonderful nurses. He had some applesauce, pudding, jello and even had pasta for dinner! He is now taking more of his meds orally and following directions much better. Toren had a restless night last night. He managed to throw himself out of bed but not to worry he did not incur any extra injuries, internal or otherwise, from the event. Our dear friend Cynthia came for Shabbos and offered to stay the night here at the hospital which was truly a blessing, giving both mum and I a full nights sleep and some time together just the two of us. Toren had a breakthrough seizure this morning that manifested in his legs and is now back on the external EEG and has been resting all day due to the Ativan they gave him to resolve the seizure. Toren had a fever today and is on a cooling blanket now which seems to be doing the trick and we are keeping in mind that with every two steps forward it is only fair to take one step back. We know you are all behind us and can feel your love and support, it makes the world of difference given our emotionally exhausted state of being. We are happy to be together though for the start of the new year.

All my love

Laini, and mum sends her best