Day 3 - Thursday Sept 2nd

It is Thursday morning I started writing this at 8:30 - but have been fortunate enough to have various meetings with doctors and nurses. Right now at nearly noon, Toren is sleeping quietly even though he is have a lot of sub-clinical seizures - which means we can see the seizures on the EEG but not in his body. He fairly well drugged up with sedatives, anti-seizure medication and pain killers, topped off with some antibiotics and medicine to lower his blood pressure. He has been so kind and brave, but is obviously periodically very uncomfortable physically and emotionally.

It was another long night. Toren has been having increasingly longer and more frequent mild seizures.. so the doctors can collect lots of data and that will help them figure out how to address the 2nd and maybe 3rd focal point/s. Toren had a restless night, but still managed to get some real sleep. He is still unable to move his right side in any significant way.

We remain confident that this is not the result of a stroke... they did all the MRI/CAT scan's yesterday and right after surgery. We have seen this before after seizures... how much rehab it will require remains to be seen... but we know that Toren is determined and strong.

He is still unable to really talk, but lets us know he has needs (and we are often able to understand what to do for him).

Toren gives waves to all who enter, and hugs to many of his favorite nurses. He enjoys holding hands and giving us hugs. He is often aware of the onset of the seizures, and lets us know with sounds, or hand waves.

Helaini and Mummy left yesterday early evening and Fiona spent most of the evening with me, plying me with liquids, foods and much needed distractions. I am so lucky to have friends who have been email, commenting, texting, phoning and visiting. It helps.

While I am rather tired (Fiona will come in this afternoon to give me a chance to go back to the apartment to sleep.

Toren's drains are out - which is a good thing - I got to help by holding his good arm - it was my work out for the day. His doctors and nurses have been so wonderful and supportive and clearly remain determined to keep me involved in the conversation about what to do next.

It is strange to say - but brain surgery and post operative experiences are not as horrific as I had imagined. In my world I feared it would look a lot like our crisis in the ER and ICU after an uncontrolled episode... He is far less uncomfortable, and less vulnerable. more later