Somehow stop the seizures - more medications... let Toren's tired brain and body rest for 24 hours and then slowly peel back the medications so that he can seize again, hopefully with a clearer pattern, similar to his prior seizure pattern and then the doctors can come up with a plan of action. Mapping, further resection/s, vassal dilator, etc. etc.. Because of the Tonic seizure activity we are staying up on the 12th floor - Neuro ICU - at least for the time being.
Your prayers and messages make a significant difference. I am in awe of the staff here. We are so very blessed to be in this place, supported by all of you, seen and unseen... and in so many different ways.
I find myself in a place of strange peace, the knowledge that we are doing what we can, and that God will handle the rest is soothing. The unseen - ness of this path we travel is its own strange blessing. The candor and inclusive style of Dr. Carlson and Dr. Doyle and his NP Alison is truly inspiring. However, this journey plays out. I know without doubt that angels are walking the path with us, and that we are held up by the love and kindnesses of so many.
We do send much love your way. Toren, we are thinking of you all the time and looking forward to a big hug in Saratoga when you get home!
ReplyDeletexxoo
~Robyn
thank you so much Robyn... we miss you...
ReplyDeleteI'm going in backwards order here.
ReplyDeleteI love how eloquently you summed this post up though. You seem to be in a very good place right now and I think that will carry over to Toren too keeping the positive energy around him.