11pm Saturday Night... its been a rough day.

All day today we have cycled from relief to anxiety and back again. The medical team have been trying to managed the seizures and with each change(increase) in anesthesia and anti-seizure medicine they make progress for several hours as many as four - and then the tide turns and the dragon rears its head again, and Toren's seizures break through the medical barrier... and the team consults and explains and makes significant increases in dosage and Toren's brain and body get some respite before the fight begins again. Helaini and I are both sleeping here in the room tonight. The doctors have already put a plan in place for the next onslaught if it comes. We feel your prayers. We had visitors today, lots of powerful and positive messages and support... I will share more about the day next time we write. Wishing you all a peaceful start to your week.

All our love,

Helaini and Martina